My Life With Crohn’s

Hello to everyone here. My name is Josh and I am 28 yrs young…. Lol. I was diagnosed originally with uc in 2007 where I ended up in the hospital for 2 weeks, but my symptoms started back in 06. I had constipation n had bloody stool. I did not pay attention to it at 1st thinking it would just go away n it did for about 2 months then it came back n this time it was worst. They had to carry me to the e.r because I could not walk due to the pain. The 1st week in the hospital I had nothing but diarrhea. Going total of 15 times to the bath. The 2nd week was a lil better. I was able to hold down food, not go so much to the bath, and was a bit more active. Oh, I forgot to mention that I was weighing 119 lbs and my regular weight was 150. Anyway, finally I was able to go home but was not out of the woods yet. For the next 2 months I still had somewhat of a flair up so I was watching myself. Finally I got out of it in May of 07. I felt good but not g reat. It would sometimes hurt when I would go to the bath. My meds consisted of asacol, azaithoirpine, and prednizone. After a couple of months of feeling ok i stopped taking the meds…… Big mistake! I rel-lapsed in May of 08 n this time it was just as bad. The good thing is I didn’t go to the hospital, but the pain was just as bad. I was bad for 2 months again and wanted it to end already. My g.I doctor recommended me to a specialist in cedar. I went to the specialist and he put me on remicade in 09. My symptoms where improving a bit. I would get my infusions every 8 weeks, but after a while my symptoms would return like in the 6th week or so. After a yr and half of remicade(along with all my other meds) he decided to try humira Wich seemed to do the trick if i got the shot in time. The only thing is that its. Painful shot and its done every 2 weeks so that was not fun. In November of 2010 I had a colonoscopy and he determined that I had more chrons than uc. So he d iagnosed me with chrons/colitis. My illness is mostly concentrated about 30 centimeters In to the rectum. The rest of my g.I system looks to healed. Now I’m back on remicade again and i had a minor surgery to have a ceton put in due to a fistula. The pain in the rectum I feel has gotten worse. I have been on pain killers non stop for almost 5 months now. The remicade does help to a certain point but After that i don’t know what to do. I refuse to have surgery cuz I know that somehow God will heal me. I feel that if i give the rectum time to relax it will start healing, but its hard cuz if i don’t eat my stomach hurts and if i eat i gotta poop and that’s where the pain starts. Luckily I have not had a major flair up since 08, but i do have constant little ones. My problem seems to be the rectum. If i could somehow get that under control I know that i would be in a better shape. Well that’s my chrons story my friends. If there is any advice I would su re love to hear it. Thank you for reading.

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Crohn’s Disease and Stress

Hello! And thanks to Adam for helping us get this site off the ground and up and running ;)

My post is about stress, and ways to reduce it. I know, it’s in the news all the time! Like this recent article about kids with Crohn’s and/or colitis: http://www.doctorslounge.com/index.php/news/hd/26852….

Or this article about twenty-something workers that kind of breaks your heart to read….
http://www.huffingtonpost.com/2012/02/15/young-wall-street-bankers-health-risks_n_1278947.html

But, and this is where this site comes in, what can people do to alleviate stress? Why is it so important? Since I wrote about my own stress, and literally told the truth in the MORE magazine piece about me (Against the Odds, Feb., 2012), Inhave gotten quite a few emails from people with Crohn’s and ulcerative colitis. One woman wrote and asked me why I said Crohn’s wasn’t fatal in some cases (I was referring to my case and brush with a bowel perforation due to my obstruction in April-May, 2006)… But, she was right! IBD can be fatal, and needs to be taken very seriously by doctors, families, caregivers, teachers, spouses, etc.

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A Thanksgiving post to share

Tryptophan is one of the 10 essential amino acids that the body uses to synthesize the proteins it needs. It’s well-known for its role in the production of nervous system messengers, especially those related to relaxation, restfulness, and sleep.

I am now aware why I love turkey so much—I sometimes even crave it. I always feel more relaxed after I eat turkey, and this may explain why…. Since it is almost Thanksgiving, I thought I would write a post about this, and it may help those with UC also.

Tryptophan has the ability to raise serotonin levels, too! Wow, who knew this? I love the fact that I can eat turkey, nuts, seeds, bananas, soybeans and soy products, tuna, shellfish …. organic, locally-raised red meat as well, AND feel better due to the addition of this amino acid. I have tuna fish once a week, and I crave it also—I only buy tuna caught sustainably, such as by pole or line methods, without the use of what is called “bycatch,” which sounds like what it is—a horrible method of using nets called purse seines (Watch this horrible video to see the damage!) . Tuna is a delicacy, and should ONLY be purchased from a fully accredited and Greenpeace-certified company.

Tryptophan also boosts the production of B3, and since I have a partial bowel resection in 2006, I need to keep track of my B vitamins (especially since my terminal ileum is completely gone.

Everything I eat is sourced, and mostly bought from local farms. It is not that hard to do. For instance, our turkey is a Vermont-raised, free running turkey :) Potatoes are from here, butternut squash, apples, pumpkins—all from Vermont; cranberries are organic and from Cape Cod. Happy Thanksgiving!

So, cool. A bit or dietary research unravels mysteries of cravings from this writer with Crohn’s disease!

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